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CUV, CLINUVEL PHARMACEUTICALS LIMITED
macgyver
post Posted: Today, 10:55 AM
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In Reply To: seeva222's post @ Today, 10:22 AM

Even though he comes across as somewhat of a quirky quack, kudos to Dr Resnick for increasing public awareness to Scenesse.That will be beneficial in years to come. He's definitely in the right location, down in sunny Florida and close to stars and starlets.

 
PunkassDerm
post Posted: Today, 10:36 AM
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In Reply To: Johnny H's post @ Today, 05:09 AM

Well said.
Agree orphan drug, nothing else approved and effective.

On dropping generic drugs, this is new and frustrating. Drugs that have been staples for years.


Here is my big issue:

Desonide can be purchased with a GoodRx coupon at Walmart for 30 bucks.
What justification to deny coverage then? Yes patient can still get drug, patient pays huge premiums and insurance skates away without paying.

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seeva222
post Posted: Today, 10:22 AM
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10 days until this is available in the US.

 
seeva222
post Posted: Today, 10:22 AM
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10 days until this is available

 
Johnny H
post Posted: Today, 05:09 AM
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In Reply To: seeva222's post @ Today, 03:36 AM

The formulary is a master list of prescription drugs that an insurance plan will cover, and the different tiers for copay.

Usually, the insurance plan will only drop a drug from their formulary if there is a cheaper and more effective medication for the same indication.

In the case of desonide, it's almost $200 per tube, which is pretty expensive for a Class VI (weak) steroid.


As a drug treating an orphan condition with a previously unmet medical need, Scenesse does not have any alternatives, affordable or otherwise.

Insurance companies will do what they can to drag their feet, but in the end, they'll end up covering Scenesse. If they drag their feet long enough that a patient takes them to arbitration for denying coverage, they'll lose. The FDA approved Scenesse as a once every 60 days treatment for EPP, and that's what the insurance companies are going to end up paying for. US private insurance doesn't have European style rationing; they can't decide to cover less than the indicated number of treatments (6 per year) because of the cost. This is especially true because EPP is a chronic condition; the insurance company can't deem you "cured" or decide that there's no further benefit to additional treatments (which they CAN do for certain very expensive chemotherapies).

I think that the most likely explanation here is that Dr. Resnick made the webpage a long time ago, and the information is not current. I have no doubt that he'll be doing 6 implants per year if it's what the patient requests.



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I heard about Clinuvel at Fyre Festival

Said 'Thanks' for this post: San Diego  gerritbakker57  KRD  macgyver  PunkassDerm  johnnytech  
 
seeva222
post Posted: Today, 03:36 AM
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In Reply To: PunkassDerm's post @ Today, 01:02 AM

What does “drop from formulary” mean?

 

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PunkassDerm
post Posted: Today, 01:02 AM
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In Reply To: Clinhope's post @ Yesterday, 10:34 AM

Simply $$$...they don't want to pay. Look at southern states in the US, where nearly year 'round, are warm to hot. People work and spend time outdoors in the winter, albeit more covered.

Insurances getting away with too much. Denying Rx for steroid creams clobetsol and desonide, which I have been writing for 20 years, generic and cheap. Suddenly denied because they chose to drop from formulary. Based on what?

 
G dawg Delaney
post Posted: Yesterday, 06:45 PM
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In Reply To: seeva222's post @ Yesterday, 04:36 AM

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It shouldn't be just for cosmetics. It should be for skin protection.. It's a shame the FDA views this as a cosmetic treatment.
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I don't get it? A Scenesse tan is the definition of "skin protection" and nothing else. If you consider tanned skin as cosmetic you have no understanding of the photo protective properties of a "tan". They 100% wouldn't consider a tan as a cosmetic treatment in too many Asian countries.

 
Clinhope
post Posted: Yesterday, 10:34 AM
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In Reply To: KRD's post @ Yesterday, 04:11 AM

Good thing it says SHOULD not, instead of cannot. The Dr will need to justify (to the insurance company?) that the EPP patient will require more than 4 / year for a given reason, such as living anywhere outside of the arctic circle.

The idea that EPP patients don't need protection in the colder months never made sense to me. Of course only a EPP patient or Dr (PAD?) could answer this, but wouldn't it be just as critical for them to get outdoor/sun exposure for general mental health and Vitamin D during the cold months as the summer months?



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royco
post Posted: Yesterday, 05:08 AM
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In Reply To: royco's post @ Apr 4 2020, 05:32 PM

Eps growth rate becomes negative for the quarter.
🤔



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