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post Posted: Apr 23 2020, 11:33 PM
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In Reply To: Frogster's post @ Apr 23 2020, 03:48 PM

He was pointing the camera up towards the ceiling of his luxurious corner office/duplex apartment, because he didn't want us to know he was living it up in Singapore graduated.gif

post Posted: Apr 23 2020, 10:29 PM
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I realize it's certainly a small sample size of people and on top of that, impossible information to find out I'm sure, but it would be nice to know if any Scenesse patients have/had Covid. Wouldn't really prove anything but just be something to ponder.

post Posted: Apr 23 2020, 06:56 PM
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This is ludicrous - there’s no reason in the world their local doctors can’t do it. Anyone medical professional and administer the implant. Hell, I’m not even sure you need medical training at all.

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post Posted: Apr 23 2020, 06:15 PM
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Not sure whether it was posted before, I don't think so.
As was suspected already before... not so good news from the german epp-community:

First effects of the pandemic on the treatment of EPP patients!

We feared it, but hoped that we would not have to report such a story, but now it has happened - the effects of the current situation have hit Corinna, who is classified as a risk patient and is not being treated!

It is unimaginable to be forced back into the dark after years of treatment, during which a reasonably "normal" life was possible, and to have to fear unspeakable pain again!

(PDF document created in the evening of 21 of Apr, so pretty new)

Corona prevents treatment
Actually, I would almost be in Berlin to get my second Scenesse implant today at the Charité. Actually. But in fact I am at home and I am afraid (again) of every next fine weather day. The next pain, if I don't pay enough attention and get too much sunlight.
This is also a Covid-19 related situation.
I had heart problems seven years ago and was therefore classified by the doctors of the Charité as a risk patient worthy of protection. Thanks to the special conditions of admission of Scenesse, only the treatment centres in Berlin, Chemnitz, Düsseldorf and Mainz are allowed to carry out the treatment here in Germany. Simply send the prescription here and have my family doctor place the implant.
I am therefore "worthy of protection" - and therefore lose my protection from the light of the sun indefinitely

At least the Patient representative of NRW, Claudia Middendorf, has already written a statement:
"People with disabilities must not be discriminated against or treated unequally even in this situation. In particular, they must under no circumstances be deprived of health services or denied access to health care".

Whether it helps or not remains to be seen.

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post Posted: Apr 23 2020, 06:08 PM
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In Reply To: Frogster's post @ Apr 23 2020, 03:48 PM

Thanks for the link.
Small tipp for everybody not willing to signup:

If you watch the video in fullscreen, it will stop at 15sec. If you just click play in the middle of the videoframe without exiting fullscreen mode, you can watch it till the end without registering.
Just if you close the fullscreen, it says you need to register. graduated.gif

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post Posted: Apr 23 2020, 05:39 PM
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Actually I quite like PW now.
He patiently wait and didn’t rush an entry into China until he found someone reliable and reputable equally as Clinuvel.
Secretively ambitious, doesn’t care a dollar or two, he’s only after big bucks!


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post Posted: Apr 23 2020, 05:21 PM
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In Reply To: trisail's post @ Apr 23 2020, 01:51 PM

This crossed my mind when I first read the announcement also. Upon reflection I think its a good move. China would get their hands on Scenesse in any case and as the big tobacco companies found out in the past, it's best to be involved in the rip off from the start and possibly have a hand managing the black market.

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post Posted: Apr 23 2020, 04:55 PM
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Chinese market is quite different from Euro and USA markets. Simply because CCP made own rule about everything.
On paper it says WinHealth’s headquarter is based in HongKong. Actually I would say Hangzhou is its real headquarter because it is where Xi’s roots are.
Secondly, this treatment is still quite expensive. Only upper-middle class in China can probably afford it. So the targeted group should concentrate in the first tier cities like Shanghai, Shenzhen, Beijing, Hangzhou.
This leads to my next point. You don’t need to access to all the hospitals but only the big ones in the first tier cities. Normally they are state-owned.
Back to political environment, as long as WinHealth’s CEO is well connected, everything else is minutiae except risk and compliance/ongoing monitoring stuff.

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post Posted: Apr 23 2020, 04:31 PM
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In Reply To: Billy Boots's post @ Apr 23 2020, 04:17 PM;FId=t1:147:1

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post Posted: Apr 23 2020, 04:28 PM
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In Reply To: Billy Boots's post @ Apr 23 2020, 04:17 PM

Love it when you comment Billy


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